Tag Archives: Guest Blogger

Guest Post: When an Angling Passion and a Fish Allergy Collide

I learned to enjoy fishing a couple years before learning that I was allergic to fish.

My first fishing experience happened when I was a boy of four. My immediate family was down in Texas on a cattle ranch owned by my mother’s family, which, like most ranches in the area, featured a pond that was regularly stocked with fish.

Accompanied by our dad, my brother and I went to work on the pond with nothing but a cane pole, a plastic bobber, and a worm on a hook. I don’t remember much about that day of fishing, with the exception of a clear memory of gripping the wetted line and hoisting aloft my first, wriggling catch – a perch of what must have been no more than five inches.

Of course, I had plenty of help from my dad but pride swelled in my chest.

A few years later, another sensation signaled that I’d have to take extra precautions with fishing for the rest of my life.

Right after the birth of my third and fourth brothers – the twins – my mother arranged a housekeeper to help tidy up our Northern California home. She was a great help to us, and very generous. The housekeeper’s husband was an avid angler who fished the San Francisco Bay and sometimes ventured into coastal waters for larger fare.

One day our housekeeper turned up with the gift of her husband’s latest catch – a beautiful red snapper. The species of rockfish has since become somewhat endangered off the California coast. My mom dutifully accepted the snapper and proceeded to fillet and cook it.

Like many Western families at the time, our experience of eating fish was limited to the occasional tuna fish sandwich (a nice break from peanut butter and jelly or bologna). So, the spread of snapper and thick potato chips was quite the novelty, and my brother and I made quick work of eating it.

A few minutes after finishing the meal, however, I began to feel a prickly sensation in my mouth and throat. Looking in the mirror, I saw that my lips were ringed with red hives. In a few more minutes, the hives sprang up on my back as well. The reaction (not to mention the age range) was very similar to Simone’s account of her first experience as noted in the blog post linked here: Oral Allergy Syndrome.

Luckily, the reaction stopped there and subsided over the course of a day, but the implication was clear: the snapper had caused an allergic reaction.

This was quite the surprise, given my family’s regular consumption of tuna fish. But fish and shellfish allergies are quite complex, it turns out. Some people are allergic to certain proteins called parvalbumins found in all fish species. Others, like me, are allergic to the parvalbumins found in some fish species but not others.

Unfortunately, there’s no real pattern of intolerance for me to follow. Tuna are in the Scombroidea family, which is the best tolerated fish among those with fish allergies, and I’ve continued to eat tuna to this day with no impact (although I take my tuna sandwich with my epinephrine auto-injector at the ready, just in case).

I’ve had allergic reactions to other species, including cod and mahi-mahi, during a couple of controlled-condition tests in my early 20’s. In each case, the reaction was the same: a prickly sensation in my throat accompanied by hives. It has never risen to a level beyond one that is manageable by a dose of an anti-histamine to minimize the hives on my body.

I’ve stopped testing new fish species since it just doesn’t seem worth it to take the risk. Despite the new allergy, I’ve maintained an interest in angling over the years. When I fish, I follow the recommendations from the American Academy of Asthma and Immunology (AAAI):

  • Wear gloves when handling your catch. Bonus points for wetting them before making contact to minimize trauma to the fish if you’re planning on a release.
  • Minimize the chance of sticking yourself with the hook. The best way to do this is with a good pair of jaw spreaders and fishing pliers. Together, they make quick work of removing a fish hook, which again is easier on the fish.
  • Never forget your epinephrine auto-injector.

Of course, the AAAI cautions anyone interested in fishing to follow their own best judgment. Their rules have worked for me so far, allowing me to keep pursuing my angling interest.

Recently I launched FishingTech.com. Because some of the most rewarding aspects of fishing – cooking and eating them – are off the table for me, the site’s focus is on other areas: the history and future of the electronics, gadgets, and software that make the sport easier for pros, more fun for amateurs like me, and more accessible to folks who couldn’t otherwise be fishing.

I like to tell myself that the fish allergy is also helping me by giving me some kind of karmic boost, with the fish somehow sensing that there’s no possibility of predation. But if that were the case, you’d expect a better success rate.

But I guess that’s why they call it fishing, not catching!

– Andrew M.

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Guest Post: The Time I was Diagnosed with Oral Allergy Syndrome

When I was 8 years old, I was at a family get-together and fruit was being served. I was happy to see watermelon on the large platter, as it was my favourite fruit. I grabbed a piece and took a bite. Suddenly I noticed something didn’t seem right. Something didn’t feel right. My lips started to burn and itch, something I had never experienced while eating watermelon, or any food for that matter. After a few minutes, the tingling feeling didn’t subside, but rather increased. I went to the washroom and saw that my lips had a red rim around them and were starting to swell. When I returned to my mom and told her what had happened after eating the watermelon, she (like me) was confused. She proposed that it could be an allergic reaction, but to a fruit? It didn’t seem to make any sense. The following day, she called the allergist and booked an appointment to speak about what had happened.

And like my mom thought, my allergist suspected it was an allergic reaction. To confirm our suspicions, he administered a skin-prick test to check for any reactions to seasonal and environmental allergies. I was told I needed to wait a while for the test to be complete, but a few pricks on my arms were extremely itchy and red. Upon completion, he explained that I was reacting the most to birch and ragweed pollen.

My allergist began reading out a list of fruits and vegetables asking if I had experienced this sort if feeling to any of them in the past. When I told him I didn’t think so, he told me that it is very likely that one day I’ll develop sensitivities to them as well. He explained to me that it was likely that I had Oral Allergy Syndrome (OAS), which is also known as Pollen-Food Syndrome. This type of food allergy is quite different, as certain foods are related to the environment and specific pollens. He helped me understand that it is like mild food intolerances that affect your mouth and oral region. What’s interesting about OAS in my case, is that I can eat the cooked version of some of the raw fruits and vegetables that I’m allergic to. This is because the heating process destroys the proteins, making the immune system no longer recognize the food (Source: http://foodallergycanada.ca/2018/04/research-april-2018/). Though people with OAS usually have a mild reaction, it can however, though very unlikely, become anaphylactic, so I carry an EpiPen® with me every day just in case of an emergency.

Since the day I first experienced an allergic reaction, over 10 years ago, like my allergist anticipated, I have developed many more allergies to fruits and vegetables that are within the birch and ragweed oral allergy families. I have learned through my experiences to strictly avoid any foods that bother me. What’s interesting to me is that after speaking to others about this syndrome, many people are shocked to learn about the possibility of being allergic to something other than the most common food allergens. Even as someone who is living with this syndrome, I truly believe that the conversation around it is lacking in the greater conversation of food allergy awareness. I hope my story begins to shed light on OAS so that others may learn and understand what this type of allergy entails. If you also have OAS, I would love to hear about your experiences in the comments below!

– Simone D.

Guest Blog: Treat Allergies Seriously, Even in the Movies

The community of food allergy advocates has erupted in outrage over a scene in the movie “Peter Rabbit”, released in February, 2018. In the scene, a rabbit escapes from a man who is severely allergic to blackberries by throwing his allergen at him, resulting in an anaphylactic reaction. Many viewers were concerned that kids would copy this behaviour, whether as bullies or in jest, with life-threatening consequences for those with severe food allergies. There were also questions as to why the scene had even made the cut, given its upsetting content.

As an adult, I’m grateful I don’t have to worry about a school bully capitalizing on my food allergy. However, I was sad to see how many people thought portraying an allergy and anaphylaxis like this wasn’t a big deal, or who thought viewers were being oversensitive. This reflects the struggles I’ve experienced when explaining the nature of my allergy to other adults. I always try to stress how serious it is, especially when asking for accommodation that affects those around me. Unfortunately, some interpret these requests as asking for special treatment or attention. Even worse, some ignore them altogether.

The bottom line is that allergens are a serious physical threat to those with food allergies. They should never be used as weapons or to threaten others, no matter how casually, even in a movie. Furthermore, no one who has allergies is using them for attention or special treatment. We require accommodation that may inconvenience others sometimes, but this accommodation is ultimately necessary for our safety.

Personally, I find the scene in Peter Rabbit to be in poor taste (no pun intended). However, it sparked great public discussion about food allergies and anaphylaxis that may have reached more people than the actual movie itself. Hopefully in the end this discussion will benefit people living with allergies.

  • Agnes S.

Say Yes! Guest Blogger – Sloane Miller

Allergic Girl photo by Kenneth Chen

By Sloane Miller, MSW, LMSW
Allergicgirl.com

Two years ago I went on a blind date. The date wasn’t a romantic match; but he told me about musical improv-improvisational comedy created in a musical theater form. I had never done anything like improvisational comedy before; but I knew I loved to sing and I loved musical theater. So, a few months later, I signed up for my first class. Being silly, on stage, with a group of strangers was pretty terrifying. But there was a small part of me that also found it exhilarating. The more I practiced, the more classes I took, the more the terror was replaced by joy.

The core premise of improv is to say “Yes, and” to your partner. It does not simply involve being spontaneous. It involved saying ‘yes’ to everything presented to you in a theatrical scene (which hopefully will open up the scene to something potentially funny or brilliant or clever, goofy or simply bring the scene to the next place.

Sloane Improv
Having fun at improv!

As someone who grew up with food allergies, asthma, allergies and eczema, my childhood was filled with a lot of “Yes, but.” “Yes, I’d love to come over for a play date, BUT I can’t because you have dogs and I’ll have asthma issues and allergy issues.” Or, “Yes, I’d love to have a piece of that German Chocolate Cake. BUT it has tree nuts and I’m allergic.” Or, “Yes, I’d love to go outside and ride our bikes. BUT I’ll have asthma and allergy issues.”  Once I left home for college, as a young adult, I set out to discover how to expand my horizons while remaining safe. That is to say, how to add more ‘yeses’ to my life despite the ‘buts’.

Throughout my adult life, especially these last eight years of being a food allergy counselor author and speaker, that has been my task: how to add more ‘yes’ to a life that has some definite ‘buts’ and ‘nos’.

The facts of food allergies and anaphylaxis are clear. Food allergies are real and serious. Have a plan, know your triggers. and know what to do in case of an emergency. Carry your emergency medications on your person at all times as anaphylaxis is a swift and severe reaction that can be fatal. Epinephrine auto-injectors are the first line of defense in a severe, life-threatening allergic reaction.

Those facts are real and cannot be ignored; and those facts can feel like the biggest ‘Nos’ to having a life. No, you can’t eat that cookie without reading the label. Or, No you can’t just have a bit of that cake without asking what’s in it. Or, No you can’t leave your bag or purse with your medications at home when you hang with friends. And, especially: No, you can’t kiss someone who just ate your allergen.

So, how does anyone expand one’s horizons (say yes to fun, connection, joy, expansion, intimacy) while remaining safe (saying no to allergic triggers) especially when food and food-related events seem to be the focus at home, with family, with friends, at college, at work, traveling and/or on romantic dates?

Put simply, by knowing this. Life is more than food and who you are as a person is bigger than simply someone with food allergies. Finding your ‘YES’ as an adult is about exploring, uncovering, and developing who you are as a person, your interests, your passions, your creative outlets, your drives, your spirituality, your athleticism, your focus, and your skills.

So, where will you find your next ‘YES’?

Sloane Miller, MFA, MSW, LMSW

Food Allergy Counselor
http://allergicgirl.com/
Author of Allergic Girl: Adventures in Living Well with Food Allergies (Wiley, 2011)