Tag Archives: Arianne K.

Anxiety and Your Allergies

Stop me if you’ve heard this one before, you’re sitting in a restaurant or at a friend’s, or even on a plane. You’re minding your own business, when you see your allergen walk by in the hands of someone you’ve already made aware of your food allergy. You also made sure that any food around you was be allergen-free. But, there it is, walking around within smelling distance or maybe, scarily enough, within touching distance. You start to panic; you watch the food as it travels around the room, it looms closer and closer. You wonder, is that my allergen? Is it coming over here? Am I just imagining it? Do I say something? A million thoughts swirl around your head, you wonder if you should say something or just leave, but you’re stuck, the words form in your mind but can’t seem to make the journey to your mouth. And then it starts, the panic sets in as the food is placed near you, or you watch the same person handle your food with the unwashed hands that touched your allergen. You shrink into your chair, and try to fold into yourself, you can’t make a noise, your breath becomes short, and you’re frozen in that moment.

Portrait of young man suffering for depression

I’ve been in this situation one too many times, and sometimes the feeling of panic still creeps up on me unsuspectingly. You so badly want to speak up for yourself but you feel deflated and beat since they didn’t listen the first time. It’s enough to make you want to never venture out for food again. It can be hard to put into words the panicky feeling you get when your allergen pops up un-expectantly or in a situation you can’t remove yourself from, and even more so to voice that feeling and ask for help. It seems like anxiety and food allergies can sometimes go hand-in-hand, but that doesn’t mean we have to go it alone. It took me a long time to find my voice, and express my concern in risky situations, and yes sometimes its uncomfortable or even awkward but I’ve discovered it’s a fleeting feeling compared to the anxiety and dread of not saying anything or feeling trapped. It takes time and practice but expressing your concerns out loud and making an effort to rectify the situation will leave you with a little more confidence each and every time.

Trust the people around you and the people you care about, practice the situation with them, or have a statement prepared.
Now stop me if you’ve heard this one before, you’re in the same situation, you see your allergen coming close to you. Instead of backing down, you find your voice, confidently express your concerns and instead of dread, you feel happy and satisfied with not only the situation but also yourself.

– Arianne K.

Intolerance vs. Anaphylaxis: A Clarification

Having multiple severe food allergies has helped me grow a tougher skin to rude questions, dangerous misconceptions, and all around odd questions. My usual response to “What will happen if you eat a cashew or peanut?” is: “it won’t be good for my life, and I have things to do this week, so please keep it away.”

Some questions or myths make me chuckle a little before I answer or clear up some facts, but the one that makes me laugh and frown at the same time is the misconception of intolerances vs. anaphylaxis.

I was once at a cottage with friends, and in preparation for food and drinks I explained in great detail my food allergies and the dangers of cross-contamination. When we arrived and prepared lunch, one of the people there informed us they couldn’t have dairy at all. Diligently, we prepped food to ensure everyone eating would be safe and comfortable, and avoided cross-contamination at all costs. Fast forward to the next day, and iced coffee. I watched the same person put half a carton of 15% creamer into their drinks.  When I tried to warn them, they informed me they could have “cheat days” and, if I wanted to, I could as well.  The only thing I could do was laugh.

horizontal photograph of a cup of coffee with creamer being poured into it

It was funny at the time, but the more I thought about it, the misconceptions about intolerances and food allergies need to be cleared up. I certainly cannot have cheat days at all, and didn’t appreciate that kind of thinking, but instead of getting upset, I got educated. I did my best to inform myself, and anyone who was interested in the differences between intolerance and an allergy.

A food allergy can cause the immune system to react and, in turn, that affects numerous parts in the body. It has multiple symptoms and can range in severity from case to case. In some cases, an allergic reaction to a food can be severe or life-threatening. In contrast, food intolerance symptoms are generally less serious and often limited to digestive problems.

Telling me I could have a cheat day, is like telling Luke Skywalker he could go to the dark side for a bit. It just doesn’t work that way. So in order to clear up some misconceptions and to avoid future awkward situations here is some helpful information to help understand food intolerances a little better.

Some common food intolerances can include:

  • Absence of an enzyme needed to fully digest a food. Lactose intolerance is a common example.
  • Celiac disease.Celiac disease has some features of a true food allergy because it involves the immune system. However, symptoms are mostly gastrointestinal, and people with celiac disease are not at-risk of anaphylaxis. This chronic digestive condition is triggered by eating gluten, a protein found in wheat and other grains.
  • Irritable bowel syndrome.This chronic condition can cause cramping, constipation, and diarrhea.
  • Sensitivity to food additives.For example, sulfites used to preserve dried fruit, canned goods, and wine can trigger asthma attacks in sensitive people.

Source: http://www.mayoclinic.org/diseases-conditions/food-allergy/expert-answers/food-allergy/faq-20058538

If you have a reaction after eating certain foods, it’s important to see your doctor to determine whether you have a food intolerance or a food allergy. Both may mean you have to cut certain foods from your diet, but it can open up new doors to creative and delicious recipes, as well as problem solving and substitutes in the kitchen, helping create beautiful meals that are safe.

Man with stomach pain holding a glass of milk. Dairy Intolerant person. Lactose intolerance, health care concept.

Having one or the other doesn’t mean you’re better or worse. As a community of food allergies and intolerances, we have to work together to create safe spaces where we all feel comfortable. We should also be working together to help educate and inform each other, so we can bring that knowledge with us wherever we go. No matter what, we have to do our best to accommodate, and help each other because we’re all in this together.

Have you ever gotten a weird or quirky food allergy question or comment? How did you handle it? Let me know below.

– Arianne K.

 

Sign, Sign, Everywhere a Sign: Recognizing the Signs of an Allergic Reaction

iStock_000020351292_SmallIt started with some hives. A few here or there, maybe on my arms or a bit on my chest. I never really thought much of it. To be clear, this all happened when I was living in residence at Algonquin College. The reason why I never really thought much of it was because the place where I was living was less than clean. The carpets seemed to be always dusty no matter how many times we vacuumed or dusted, there was permanent grime on the tiled floors, and the air quality was less than desirable. I thought it must have been my seasonal allergies or my dust allergy so I bought a dehumidifier and thought I would be done with it. But nope, my hives still came at least three a week. So I opted to start using a new shampoo and conditioner. Still nothing, they were persistent little buggers who would last for hours. Only now they seemed like they were spreading. I told myself it was because I was scratching them non-stop and that’s why they were spreading. I was starting to get fed up with these little red dots! I had changed so many aspects of my life and it was not getting any better.

I had never suspected it might be the food I was eating. Prior to going to college, I had contacted the school about the cafe in the residence. I was told it was safe for my peanut and tree nut allergy. The meals served in the cafe were mostly basic pastas and meat dishes that I had nothing to really worry about.

But when I started making notes of everything I did on the days I would get these hives, it always coincided with me eating meals at the cafe. Now, I was starting to get worried, why would they assure me it was safe if it wasn’t? When I spoke with the manager of the cafe in residence they told me they don’t use any peanuts or tree nuts or nut oils. But the containers they use they get from the big cafe on campus. He put me in touch with the manager and I was on my way.

At first it was hard to get a straight answer from them, but I finally got down to the nitty gritty and realized that the same pans used for the food in my cafe, were being used in various other parts of the cafe containing peanuts and tree nuts. They weren’t being cleaned well enough and the residue was affecting me enough to cause the hives.

I was stunned, annoyed, angry, and a million other emotions. How could such little residue cause such a big reaction? I’ve always known the dangers of cross contamination, but this took the cake. I should have paid more attention to the signs, and not brushed off the hives as something less serious. Hives are a pretty big sign that something is not right. It took a few months of continuous hives before I took matters into my own hands and found out why. The staff tried to assure me that they would take better precaution with food prep, but I was too scared from the hives to eat at the cafe anymore. I bought some allergen-safe foods to cook in my own room and said goodbye to the cafe.

I learned a very important lesson that year in college, never ignore a sign. However small or large, it is important to recognize when something is wrong and attempt to correct it.

– Arianne K.

Wine not bring the cheese to the party?

Wine and cheese

Growing up with several food allergies has made me hyper-aware of the various foods around me, from parties to potlucks and beyond. I’m always trying to stress the importance of knowing every single

ingredient right down to the oils used in a dish I might eat, as well as the contents of their kitchen to avoid cross-contamination. This vigilance and awareness of my surroundings has helped me flourish as a host; I love setting up/creating/planning events, but it is always a way for me to be in control of an event where food is present.

For as long as I can remember, I’ve been theming my parties and everything surrounding them: from food, to decorations, and even what my guests wear. It can be a real pain for some people who don’t exactly want to participate, but for those who are into the idea of themes it can be really fun.  One of the best idea’s or themes that my group of friends constantly returns to is a “wine and cheese” party.  The following is quick and easy three-step guide with some tips to planning the perfect wine and cheese party that is safe for food allergies and intolerances alike.

Step One: Picking the Wine

Finding the right wine can be tricky. Your best bet is to grab a couple of bottles with different taste pallets and flavours so you have multiple options sure to please anyone. Try finding a few reds ranging from Cabernet Sauvignon, Pinot Noirs, and Shiraz; all ranging from dry to sweet.  As well, try finding a few different Whites, like Sauvignon Blanc, Chardonnay, and a Pinot Grigio for a full rounded taste option. And, if you’re feeling like a mix, try finding different blends of types, or a blush for those who aren’t sure what they like.  Now, many wines have multiple ingredients that may not always be listed on the bottle, and tasting notes may differ from actual ingredients.  When I am unsure of ingredients, my first call to action is to check the website for information, and if that fails, calling the company is always a sure way to find out all the allergen information you need. You might be surprised to know that some wines use priority allergens such as eggs or fish as fining agents.

Step Two: Cheese Please!

I always pick my wines before I get my cheeses for these types of pairing events.

As with any food, read your ingredients, find out where it was manufactured and if there is a chance of cross-contamination. A few things to remember: try to avoid blue cheese or aged cheeses if you or anyone in your party has a mould allergy given that it can cause a reaction. If you’re looking for lactose-free cheese, check out this link to a Hard Cheese list given that hard cheeses are naturally lactose-free (Lactose Free Cheese). If you’re looking for completely dairy-free cheese, a personal favourite of mine is “Chao Cheese” which comes in many forms and flavours sure to satisfy. Check out their selection with this link: Chao Cheese.

Step Three: Label Everything!

First off, as with any potluck or party, make sure you label everything! Ensure your guests know which cheeses are which, and if they have multiple ingredients, make a little card by the food or wine with the ingredients written down. Secondly, make sure you have separate serving tools for everything and encourage people to use them properly so your food doesn’t come into contact with each other. Lastly, if your guests are bringing other foods, such as fruits and crackers, make sure they follow the same guidelines or bring the boxes for ingredient references to ensure everyone feels comfortable.

Planning a party should be fun and exciting! Just because you have a food allergy or intolerance doesn’t ever mean you should be denied experiences or places. As long as the proper precautions are taken and you ensure your guests feel comfortable with the food options available, you’re sure to have an excellent time.

If you’re looking for more theme ideas, food options, etc. check out Pinterest. It is an excellent resource for absolutely everything!

Happy Planning!

Arianne

We’re going to need a bigger bracelet!

Closeup portrait nervous stressed young woman girl in glasses student biting fingernails looking anxiously craving something isolated on grey wall background. Human emotion face expression feeling

My foot was tapping the floor faster than the scarlet speedster, and my arms were crossed so tightly across my chest I could hardly breathe; but I barely noticed. Even the nervous glances my mother was giving me went unaddressed as we patiently waited in the doctor’s office.  This was my first food allergy test since I had a severe allergic reaction three days previously to perch, a type of fish. It was a reaction that came out of left field and required two doses of epinephrine, and a 24-hour hospital stay. Since my reaction was from a food that had never been identified as one of my allergens, I was too terrified to eat anything but mashed potatoes. I was paralyzed in fear of what else might cause me to react randomly, so I refrained from eating even foods I knew to be safe.

So there I sat, stomach growling in hunger, arms red and itchy from testing, and yet I barely felt a thing because my mind was too busy racing with scary scenarios. Time felt like it was at a stand still between the testing and results, when finally my doctor stepped into the room. He started with the basics; for my known allergies (peanuts and tree-nuts), the levels remained the same. He then asked me to recount what exactly happened three days previous.

I sat up a little straighter, tightened my arms around my chest and tried my best to remember:

I never liked the smell of perch, it was “gross” in my opinion so when I was told it was for dinner I was disappointed, and the rest was blurry. I reluctantly ate a small piece and immediately felt the symptoms of an allergic reaction. My father administered an auto-injector and shortly after I was taken in an ambulance where they gave me another shot and 24 hours later I left the hospital. The whole event was a blur of strong emotions and even though I should look at it as a learning event, I would rather forget it altogether.

I leaned back in my chair, close to tears and after a long pause and a lot of writing, my doctor looked up from his notes. He handed me a paper with a list of fresh water fish, and proceeded to tell me my levels on each, and simplified his explanation by saying I was at-risk for anaphylaxis to most of them.  After a long silence the first words out of my mouth were something along the lines of: “this not fitting on my medical alert bracelet.” My mother and I went through the motions after the appointment, both of us defeated by this news. After years of coming to terms with my peanut and tree nut allergies and getting a handle and level of comfort we were just thrown a curve ball late in the game. I wanted to cover my head and forget the whole ordeal; I jumped between wishing I never ate the fish and stayed blatantly oblivious to these new allergens and being thankful that the reaction happened in my home around people who knew what to do.

It took me a long time to come to terms with trying to eat new foods. Over time, I’ve come to terms with these new allergens thanks to the information my doctor gave me on that day. At the time, I wasn’t appreciative of the information but now, I think of it as a blessing.

I never truly respected and understood the importance of the semantics from allergen testing until I was thrown a fork in the road with these new allergens. Moving forward with allergy testing instead of paying more attention to my itchy arms, I listen more to my doctor and have him explain more in-depth regarding new allergens and what my levels mean.  Allergy testing has been and will always be important, and no matter what emotional events may surround your visit or why you’re there, its always better to be informed and prepared than ignorant to something new.

– Arianne.

How Your Parents Treated Your Allergies Then and Now: Once a Parent, Always a Parent

Blog Pic Nov

I was three years old when my family found out I had a life threatening food allergy to peanuts and nuts. Now, I don’t remember much from that fateful day, but the bits and pieces I’ve gathered seem to allude to the following: I ate a cracker with peanut butter on it and immediately went into anaphylactic shock. My parents rushed me to the hospital because they had no idea what the heck was happening to me.

Afterward, the doctors broke the news to my family that I was anaphylactic to all nuts and peanuts (my life story and my family’s were sent down a very different, but interesting path). At the beginning, my parents did everything to keep me safe; and I mean everything. My saint of a mother spent hours baking everything from cakes and cookies, to ice cream and bread. There were no regulations for food safety, and few companies could guarantee a safe products free of cross-contamination. So our food options were limited. Collectively, my family and extended family decided to clear our houses of all of my allergens (and my brother’s when we figured out his allergy) to limit the chances of either of us having a reaction.

They painstakingly created one space where I could feel completely safe to eat anything found in our kitchen. On top of creating meals, snacks, and even birthday cakes for fellow classmates, my mom helped create support groups for fellow parents of children with food allergies. She also become an integral part of the organization AAIA (Allergies, Asthma Information Association) and spread the message about food allergies to our local school board (to eventually make my school nut-free before its time).

Through it all, my mom and dad did everything in their power to make me feel included in events, safe and, most importantly, normal. It can be so hard on a child’s self-esteem to grow up with a food allergy, and my family did everything in their power to both help me be comfortable with my allergen and to be vocal about informing and educating people. BUT, that did not stop her from telling anyone and everyone about my allergies, sometimes in the most pre-teen embarrassing way, or announcing to any room that would listen that we had a quote “Special Alert” – me.

Fast-forward 20 years to my adulthood. My mom is still taking time to make homemade foods for me when I visit, informing anyone who will listen about food allergies, and is still taking time to discover new and safe foods for me. My family is still my pillar of support when it comes to new or lasting issues I have with my food allergies regardless of distance between us. My food allergies have been consistent in my life and my family’s for such a long period of time that they are no longer a constant topic or issue for us. Over the years we’ve found restaurants that can accommodate, safe places to travel, and resources to make our lives easier.

My parents still choose to not keep my allergen in their home, and not to eat them even while travelling. I guess some habits never go away. And between you and me, it makes me smile every time I think about it. My mom still ever-so subtly prompts me to inform servers and chefs about my allergen before I even get a chance to sit down when eating out. She still makes me re-read ingredients after she reads them and still insist on joining me on every trip I take to the allergist. My parents have always been a beacon of love and support in my life, from allowing me to spread my wings and experience life, to helping me create values and roots to come back home to.

Arianne K.

The Odd, The Strange, And The Weird

Full length of young men and woman holding a billboard

We’ve all had strange or odd questions asked of us. But something about having a food allergy brings out the truly odd, strange, and downright weird questions from people. Mind you, I’ve never shied away from helping people around me or those who inquire to understand food allergies better. In fact, I applaud most for taking time and asking a question so they can have a better understanding of the severity of living with a food allergy. But that doesn’t mean that I don’t get some really weird questions. Over the years, I’ve heard three main questions asked again and again and, each time, it still strikes me as very, very, odd.

Here are the three strangest questions I’ve been asked and the responses I’ve crafted over the years:

  • Are they Contagious?

This one is an oldie but a goodie. I’ve been asked this question since I entered Kindergarten. At first, this question used to hurt my feelings. It almost made me feel like I shouldn’t be around others. It’s taken me awhile to overcome this stigma and come up with a response that is isn’t spiteful but informative.

Response: No, of course not. A food allergy is a bad reaction to certain foods your body rejects. It is not like a cold that can be caught by having contact with someone. My food allergy affects only me; but you can help keep me safe by not eating or bringing my allergens around me.

  • I can’t see it?

Another favorite… Just because someone can’t see an aliment or sickness, it does not mean that it does not exist. I, much like many others, have been pestered about the realness of my food allergies since I was old enough to explain them. Instead of getting angry I’ve found that the best way explain food allergies is to be understanding and helpful.

Response: Just because you can’t see something doesn’t mean it’s not there. Food allergies are a very serious matter and, just because you can’t see it, doesn’t mean that it’s not a big deal. If I were to come into contact with my allergen then it will become very visually apparent and we don’t want that do we? By me staying away from my allergen, I am able to keep it under control and avoid having a reaction.

  • Can you eat this? How about this? Or that?

The endless stream of foods being paraded in front of you each accompanied with its own “Can you eat this?” There’s no easy way to deal with this and it’s easy to get frustrated or hurt. A response for this can be tactful and informative but mostly I choose to be direct.

Response: I’m not sure. I’d have to know more about its production and ingredients. I’ll let you know what I can eat, don’t worry.

We have to remember that, if people are inquiring about our food allergies, they care and want to know more and we can help them better understand. Having some answers to common questions or extremely odd questions in your back pocket can help you better cope with any situation and help them learn a little more about a serious subject.

I’m curious to hear your odd questions about food allergies! So please feel free to share.

Arianne K.