Tag Archives: Eating out with allergies

Anxiety and Your Allergies

Stop me if you’ve heard this one before, you’re sitting in a restaurant or at a friend’s, or even on a plane. You’re minding your own business, when you see your allergen walk by in the hands of someone you’ve already made aware of your food allergy. You also made sure that any food around you was be allergen-free. But, there it is, walking around within smelling distance or maybe, scarily enough, within touching distance. You start to panic; you watch the food as it travels around the room, it looms closer and closer. You wonder, is that my allergen? Is it coming over here? Am I just imagining it? Do I say something? A million thoughts swirl around your head, you wonder if you should say something or just leave, but you’re stuck, the words form in your mind but can’t seem to make the journey to your mouth. And then it starts, the panic sets in as the food is placed near you, or you watch the same person handle your food with the unwashed hands that touched your allergen. You shrink into your chair, and try to fold into yourself, you can’t make a noise, your breath becomes short, and you’re frozen in that moment.

Portrait of young man suffering for depression

I’ve been in this situation one too many times, and sometimes the feeling of panic still creeps up on me unsuspectingly. You so badly want to speak up for yourself but you feel deflated and beat since they didn’t listen the first time. It’s enough to make you want to never venture out for food again. It can be hard to put into words the panicky feeling you get when your allergen pops up un-expectantly or in a situation you can’t remove yourself from, and even more so to voice that feeling and ask for help. It seems like anxiety and food allergies can sometimes go hand-in-hand, but that doesn’t mean we have to go it alone. It took me a long time to find my voice, and express my concern in risky situations, and yes sometimes its uncomfortable or even awkward but I’ve discovered it’s a fleeting feeling compared to the anxiety and dread of not saying anything or feeling trapped. It takes time and practice but expressing your concerns out loud and making an effort to rectify the situation will leave you with a little more confidence each and every time.

Trust the people around you and the people you care about, practice the situation with them, or have a statement prepared.
Now stop me if you’ve heard this one before, you’re in the same situation, you see your allergen coming close to you. Instead of backing down, you find your voice, confidently express your concerns and instead of dread, you feel happy and satisfied with not only the situation but also yourself.

– Arianne K.

Don’t Eat the Butter Chicken: What I Learned from my Food Allergy Close Call

I was invited to watch a soccer game in a box at a local stadium.

It was a chance to network for a new job and I was feeling a little bit out of my element.

So I said yes to the butter chicken.

toned image of indian chicken curry with basmati rice

The idea of a meal prepared by an Executive Chef in a kitchen sounded safe to me.

I spoke with the Chef, read their ingredients list, and went over all the possible questions for cross contamination. Did you use a clean cutting board? Is there a designated area where you prepare the ingredients? The staff assured me that this was the standard dish they serve to food allergic guests.

I dabbed the sauce on my tongue with my finger before dipping my spoon into the dish (the classic eating-out test for me).

But seconds after the sauce touched my tongue I was administering my Epi-Pen® and was rushed to the hospital by ambulance.

The most terrifying part of the event was the ambulance ride.

The driver was stopped at a traffic light only a block away from the stadium when suddenly there was pounding on the side of the ambulance truck.

A dad was driving his teenage son to the hospital because he was going into anaphylactic shock. He wasn’t carrying his medication on him.

And he had also eaten the butter chicken.

Here’s what I learned from this close call:

  1. Auto-injectors like my Epi-Pen® are a painless tool that will save your life. This was the first time I administered my Epi-Pen® on myself. Before this, I was terrified. I would typically rush myself to the hospital after consuming lots of Benadryl®. Was it denial of being in anaphylactic shock? Fear of doing it wrong? I’m not sure. That moment made me realize how important administering an auto-injector is during a crisis.
  1. Don’t feel pressure to eat out just to feel included. In my professional life, I often have moments where I feel like I fit in and my food allergies don’t exist. I feel like we’re all equals, part of a team, working together to create something awesome. If your friends or colleagues respect and understand your food allergies, compromises can be made to tailor to your needs.
  1. Always have a buddy who knows where your medication is located, at any age. My wonderful friend rushed to my purse seconds after the spoon hit my tongue. She gave me my Epi-Pen® within one minute of the reaction starting. She knew I had severe food allergies and remained calm in the situation. She stayed with me in the hospital and reached out to my emergency contacts.Sketch illustration of two hands holding each other strongly
  2. If you trust a kitchen with preparing your food, request to have something made fresh for you with simple ingredients. Don’t go for the prepared butter chicken from the chef who isn’t working the shift anymore. If the kitchen passes your trust test, choose uncomplicated, simple food. A grilled chicken breast without sauce and one side veggie is much easier than a complex soup with a long list of possible contaminants.
  1. Despite your due diligence, mistakes can happen. The teen who also had a reaction to butter chicken was a season pass holder for the stadium. He always ate the butter chicken at games. But that day the chef used one different ingredient. We can’t predict these things and it’s part of what we live with every day.
  1. Always go to the hospital. I received a second dose of epinephrine when I arrived at the hospital. About two hours after arriving, while in the waiting room, I went into anaphylactic shock again. Always seek physician care even if you have used your Epi-Pen®.

Cashew paste. The morning chef used cashew paste and didn’t follow the kitchen’s recipe.

That night I learned a valuable lesson. We all know that eating brings people together, and in that stressful situation, I wanted to feel included. But it’s never worth the risk.

After that night, I promised myself to never again concede to the pressure to eat out in public.

Do you have any lessons from a close call to add?

– Catherine B.

Feeling Guilt over an Allergic Reaction

Young shy woman hiding your face-girl covering her face

Having a food allergy and living safely with one requires a lot of special accommodations. Often times, it is hard not to feel bad for others or guilty when your allergy has an impact on their life.

When I was in high school I went on a date to a Greek restaurant with my boyfriend at the time. I love Greek food so I was really excited for our meal. During our appetizers I was a few bites in and knew something didn’t feel right. I wasn’t having any full blown symptoms of an anaphylactic reaction but I could tell that I was having some mild symptoms. To be safe I took an antihistamine and stopped eating the food we were given. As the meal went on I was afraid to eat anymore food in case it would make my symptoms worse. My boyfriend kept asking why I wasn’t eating anything. I was embarrassed and didn’t want to ruin the dinner by telling him about my symptoms so I just lied and said that I wasn’t hungry. I was trying to take the anti histamine without him noticing as I didn’t want to make a big deal about it or have him panic and tell other people which would have made it a huge scene. I could just picture it in my head, telling a staff person, calling the paramedics, using my auto injector – all things I just did not want to go through!

After we arrived home, I was noticeably drowsy from the medication I had taken so I told him what had happened. He told me that there was nothing to feel bad about if I was having any sort of reaction and that I shouldn’t feel guilty or think that I shouldn’t tell anyone. After that scenario happened I have learned that there is no need to feel any guilt or shame when having an allergic reaction. It is so important for your safety to tell others what is happening in case the situation were to escalate and you needed help. People are more understanding than you may think and when your life is at-risk there is no need to feel bad about being an imposition. Others want to help you and make sure you are okay!

Lindsay S.

Explaining My Food Allergies Series: At a Restaurant

Some people find it daunting eating out at restaurants when living with a food allergy. Having had food allergies for as long as I can remember, I have become quite comfortable talking to servers and explaining my situation to them. As a child, my parents took the responsibility of conveying the message of my food allergies. However, once I became older it became important for me to be able to do this myself and to know when a restaurant is safe to eat at, as I would eventually be on my own without my parents at my side all of the time.

When I am deciding what to order at a restaurant, I tend to pick two items. That way if there is an issue with my top choice, the server can look into the second item before coming back. I have the same routine way of telling the servers about my food allergies every time I eat out, which keeps things simple.

I start off by saying that I have a few food allergies to let the kitchen know about and I tell the server my list of food allergies. I have a number of food allergies so I say them slowly so that they can be written down. I always confirm the list with the server. Then I tell them what I am interested in having and ask that they check with the kitchen that it will be safe. If I notice on the menu that there is something that contains one of my allergens that would most likely be cooked on the same grill or food preparation station, I ask about having my food cooked in a separate area. I emphasize that my food allergies are severe and that cross-contamination could cause a severe reaction. There have been situations in which I felt that the server did not understand the severity of my allergies and therefore asked to speak to a manager who was better able to handle the situation.

Overall, I feel that due to the rising prevalence of allergies, it has become much easier to convey the message of explaining my food allergies. Many chain restaurants often have allergy menus now, which outline the common allergensiStock_000068035835_XXXLarge.jpg that can be found in their dishes. This allows you to make a more informed decision about what to eat. The greatest difficulties I have faced have been with language
barriers. Within Canada, I generally do not have many issues, but in those cases, talking to a manager has always made things much easier and more clear. I do not let my allergies stop me from being able to go to restaurants with friends and family. I recognize situations where I might be limited, but know that if I cannot eat at a certain place, there will always be somewhere else I can go to get food.

-Sara S.

 

Nepal, Austria, Greece & Keeping on Track with Food Allergies

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This spring was quite busy to say the least. As I prepared to finish my Bachelor of Nursing Science degree, write my nursing licensing exam, and begin the search to find a “real person” job, I also found myself in the midst of planning a volunteer trip to Nepal for the beginning of June. I’ve volunteered abroad before and am quite interested in global health so I was very committed to the idea of taking some time to go on a volunteer trip before taking on ‘adult responsibilities’ in the ‘adult world’. Before I knew it, after I organized my trip to Nepal, I also tacked on a week of visiting relatives in Austria and then arranged a one week tour of the Greek Islands. Could you say that I had a bit of a panic attack thinking that after I got my first nursing job I wouldn’t have any free time to travel again? Absolutely. Was this a slight overreaction? Perhaps…but no regrets, right? Anyway, along with the challenges of organizing three very different trips there is always the challenge of taking appropriate precautions with regards to food allergies.

In the weeks leading up to my trip departure I did basic research on the cultures I would be visiting and what sorts of food I would likely encounter. In Nepal, their cuisine takes influence from India as well as China with their main meal being Dhaal Bhat (rice &lentils). With my allergies being to wheat, eggs, and nuts I was a-ok with that. I was familiar with Austrian cuisine since my grandparents would always cook Austrian meals growing up. That being said, before even booking my trip I knew their love of schnitzel doesn’t work with my wheat allergy and sausage would also pose a challenge. What I did have going my way was the fact that, when in Austria, I would be meeting with my cousins who luckily could speak German and would be able to help me find suitable food options.

Finally, the mediterranean diet would for the most part agree with my food limitations of wheat, eggs, and nuts. But it would still pose some risks in terms of cross contamination. After getting an idea of what foods I would encounter while travelling, I also did the routine task of contacting airlines and informing them of my food allergies. I will admit I did not pick my airline based on which ones were allergy friendly. Instead I looked at which ones offered the best deal. I then had to find out that some airlines such as Turkish Airlines did not accommodate allergies in anyway such as even offering a gluten free meal option to passengers. This at least tipped me off to be well prepared with snacks for my air travels.

Other preparations before I left for my trip included making sure that I had not only one auto-injector to take with me but in fact several stored in different bags so I had backup options in case one needed to be used or perhaps accidentally got lost. I also packed anti-histamine medication which I use for less severe allergic reactions and a few inhalers in case I had one of my in-frequent asthma attacks. Having travelled by myself to other countries before, something that I always like to bring is allergy cards. You can order these online through companies like Select Wisely.

These allergy cards are neat because you can have these pocket- sized laminate cards made to state your allergies as well as other phrases such as ‘I am having an allergic reaction please get me to an English speaking hospital’ in virtually any language. I naturally ordered a fresh batch of these allergy cards in Nepali, German and Greek. But the roadblock I encountered was that, although I ordered these cards five weeks before my departure date, because they were coming from the USA they didn’t actually arrive before I left. The real kicker is I flew out on a Saturday and my allergy cards arrived the Monday after! Oh well, c’est la vie! I found that a useful and convenient alternative for communicating my allergies was downloading the google translate app on my smartphone. By downloading this app I could use very simple language to communicate my food allergies and inability to eat certain foods and type this into the app. I then saved the phrases that were produced so I could easily bring them up when ordering food.

So after months of planning and prepping for my trip it was finally time for departure. For my time In Nepal, I was living in Kathmandu and the work I was doing involved volunteering with the largest women’s health NGO in Nepal. I got connected with this group through a volunteer liaison organization that provided room and board for those coming to the country to volunteer. This provided some obvious perks such as not having to find my own accommodations as well we had all of our meals provided for us by an in-house cook. I knew in Nepal it was customary to eat rice at most meals (usually at least two meals a day), but when I had my food allergies explained to the cook I could see her eyes bulge as I am sure she began to ask herself ‘what else can I make for this girl besides rice, rice, and more rice!?’

I will admit.. I ate ALOT of rice when I was in Nepal. Breakfast usually contained of fruit and some form of rice, rice donuts, fried potatoes or even fried rice noodles (I believe the cook was trying to get creative as I could not eat things like toast or egg). Lunch typically involved fried rice prepared with some fried vegetables and potatoes or beaten rice (another form of rice quite popular in nepal…usually fried). Dinner again usually consisted of dhal bhat (rice and lentils) with curried vegetables. If you want a true picture of Nepali cuisine don’t just use my blog as a source they DO eat food beyond rice including their famous stuffed dumplings called Mo-Mos as well as various noodle dishes but as I definitely experienced rice is their main staple grain.

While my day-to-day meals were always allergy friendly I did eat out from time to time and had to be careful with ordering my meals. It was tempting not to eat out in Nepal since for $3-4 american could get you a LARGE meal of your choosing. In terms of ordering safe, I always try to stick to foods I can identify as likely being allergen free and then reconfirming when placing my order. In Nepal this involved ordering a lot of curries and traditional plates of dhal bhat that came with curried vegetables, pickled vegetables, your choice of meat as well as potatoes. It was here that I would bring out my phone and show waiters my pre-typed allergy message. The organization I worked for was stationed in Kathmandu (the capital of Nepal) and I was surprised how many people in Nepal could speak or understand some English. That being said, allergies are next to non-existent in Nepal so while some educated Nepali people know of allergies this is not something they encounter regularly like we do in North America. Therefore it was important to always re-evaluate the waiters understanding while placing my order and even confirming again when the order arrived.

While I found it easy to avoid food allergens when eating out, I actually found it harder to avoid allergens at my place of work. The volunteer organization that I worked for had its main branch located in Kathmandu. However, due to the recent earthquakes that struck Nepal, we were going out to areas around the Kathmandu valley and working in health camps. Regardless of whether we were at the main branch or out in the field, lunch was always provided for the staff (something commonly done in many places of work in Nepal). These would be simple lunches of Mo-Mos (dumplings) or packets of dried noodles which are extremely popular in Nepal (yes, exactly like the ones you ate in grade school). That being said most days I could not eat any of these lunches and instead brought my own.

Some of the staff did not speak English so, when I politely declined their offer to have some of their food, it was hard not to feel completely rude. After a couple of these offers, during which I received strange looks for not wanting their food, I brought my phone with me to work so I could communicate to everyone that it wasn’t that I didn’t like their food but literally could not eat it. They definitely understood and even on my last day of work made me a special lunch with only foods I could eat— just one small example of the incredible kindness and hospitality of the Nepali people. I am thankful to say I did not have an allergic reaction while in Nepal and in fact was more successful at avoiding my food allergens than avoiding drinking untreated well water…but that is an accident and a story for another time!

After the trip of a lifetime to Nepal, I flew to Austria for a week. Here I will admit I was fortunate that, for about 2/3 of my travels, I was with cousins who could help with translating food allergies when ordering or helped with reading ingredient lists. While on my own I still didn’t find it too difficult to order food and communicate my allergies. I attribute most of this to the fact that I was in tourist centres like Vienna and Salzburg where it wasn’t hard to find those who spoke English. When it came to buying food at stores, when in doubt, I simply would look for a friendly stranger who spoke English and could help me translate what the package said. I had the google translate app ready to go but found I didn’t need to use it often at all. Again I was fortunate that Austria proved to be a trip that was reaction free!

For my final stop in Greece, I found it slightly more difficult to order food than in Austria. I obviously didn’t have family right there to translate, as well I found English wasn’t quite as commonly spoken here. That being said, while travelling the Greek islands, many of the cities are tourist hot beds so you will find someone working in a restaurant that does speak some English.

Another thing I found was that sometimes the personality of servers in Greece were such that, depending their mood or how busy they were or maybe just how they were feeling that day, this would dictate their promptness for allowing you to order with a ‘special request’ (i.e. a allergy safe meal). Despite this I did appreciate that they always did pay attention to my actual concerns and were very good about making alterations as necessary so I could eat safely wherever I was.

Even on my last night in Greece I was dining with some people in Athens and after having one of the best dinners of my trip the waiter/owner of the restaurant brought everyone at our table a piece of a pastry. I graciously thanked the man but explained that this was also something I could not eat. He of course understood and then came back a few minutes later asking if I could eat watermelon. After I said I could, he came back with an entire chopped up watermelon for our entire group! One of the greatest experiences of my travels had to be seeing the generosity and thoughtfulness of people are all across the world!

Yes, it can definitely be extra work and an added responsibility when travelling with food allergies. But I am a firm believer that it is not something that should hold you back from allowing you to gain life- changing experiences and travelling around the world! There are so many other things to consider and precautions to take when travelling with food allergies. While I tried to take precautions that made sense to me, feel free to comment below with tips and tricks you use to stay safe while travelling!

Caitlyn P.

Bringing Food to Restaurants

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One of the realities of living with severe allergies is the limited exposure to many restaurants. Although you can make plans to eat-out by speaking to the appropriate restaurant staff, most restaurants cannot completely guarantee an allergen-free meal. If you are faced with an important event that cannot be missed, or if you are travelling abroad, bringing your own food to a restaurant may be a safer alternative. I personally love to travel and, in some cases, have had to bring my own food to restaurants. Below, I’ll briefly outline my experiences (positive and negative) in doing this.

When I was younger, I always felt awkward or “out of place” when bringing food to restaurants. In some cases, restaurants will not even allow you to bring your own food. I found this to be the case in Europe. I remember going on a guided tour of Budapest with my parents. I knew I had to bring my own food because explaining my allergy would be too difficult given the language barrier. When my parents and I arrived at the restaurant, we were immediately told that I was not allowed to bring “outside food” into the restaurant (which left me feeling awkward and embarrassed). I think my key learning from that experience was flexibility. Although these situations can be difficult, you have to find ways to make it work in a given situation. You can try going to another restaurant, or find a public space where you can feel comfortable eating your own meal.

Although I’ve had some negative experiences, I’ve also had many positive experiences at restaurants. Most restaurants in the United States and Canada understand the implications of food allergies. If they cannot provide a solution, most will try to accommodate you in the best way possible. That being said, more expensive or “prestigious” restaurants may have the “no outside food” policy in place. However, you should typically have no trouble at family restaurants or more casual buffets. In any case, it would be wise to call in advance to make sure that the restaurant that you choose allows outside food.

Further, you need to treat each restaurant excursion on a case-by-case basis. If you have to bring your own food because there is no other alternative, then bring it. Remember, your health and well-being are your first priorities! Never put yourself in a dangerous situation for the sake of convenience.

Saverio M.

Back to School and Allergies

College student backpack

Heading back to school can be a fun and exciting time! Getting to see your friends again, purchasing new school supplies, and meeting your new teachers are just some things to look forward to. On the other hand, going back to school may be overwhelming, especially when having to manage a severe allergy.

I know because I’ve been there…As I enter my final year of undergraduate studies at university, I’ve taken some time to reflect-back upon my elementary and high-school days. I was diagnosed with anaphylaxis back in 2004, at the age of 10. I remember feeling overwhelmed as I contemplated the potential challenges I would face in my future. What will my friends think? Will I ever be able to eat-out? How and when should I notify others about my allergy? For the most part, I’ve been fortunate enough to have supportive friends who understand the implications of severe allergies. Although some may not be as understanding as others, taking a proactive approach in managing your allergies should help alleviate or minimize any problems that you may encounter. Here are some tips that I have found helpful in terms of managing allergies at school!

1. Understand that you are not the only one with allergies at your school: In most cases, you will not be the only student in your school (or class) with anaphylaxis. I remember going through school and there being at least one other student with an allergy (if not anaphylaxis). You are not alone!

2. Bringing-up your allergies at the appropriate time: When making new friendships, it’s often difficult to gauge when the appropriate time to discuss your allergies may be. The appropriate time and place will depend on the individual and the nature of your relationship. In any case, always make sure to notify your friends about your allergy before eating-out at a restaurant. Never feel peer-pressured to go to a restaurant and “risk it.” Take a step back, remember that your health is your most important asset, and tell those around you about your allergy. It would also be wise to show them your medic-alert bracelet and where you store your auto-injector.

3. No trading lunches! When I was in school (particularly elementary school) I remember always being tempted by others to trade lunches or try different foods. Don’t! You don’t know who has handled the food and whether or not there is risk of cross-contamination. Again, never feel ‘peer-pressured’ into trying food either.

4. Seek-out allergen-friendly snacks: Luckily, a lot of positive change has transpired since 2004. Organizations such as Food Allergy Canada have done a fantastic job of spreading awareness about anaphylaxis. As a result, a lot of corporations have taken steps to produce and market allergen-free snacks. Many big-box grocery stores supply peanut-free, nut-free, and gluten-free snacks – some specifically designed for school. Seek these out!

Hopefully, you’ll find some of these suggestions helpful. No matter what age you are, going back to school can be overwhelming. Making a plan beforehand can help alleviate some of your stress moving forward.

Saverio M.